GSB 7.1 Standardlösung

Prevalence of type 1 diabetes

The frequency (prevalence) of illnesses and the resulting absolute number of cases are key figures with which to assess the current trajectory of a disease. Prevalence also determines patient care and provides an important basis for health policy planning.

Key messages

  • In 2019, around 31,000 children and adolescents in Germany had type 1 diabetes.
  • The prevalence increases with age and is highest among 15- to 17-year-olds.
  • There was a slight annual decrease in prevalence between 2014 and 2019, the prevalence decreased slightly every year and more so among girls than boys.

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By state

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  • By gender

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  • By age

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  • By education group

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Result

In 2019, the prevalence of type 1 diabetes in children and adolescents aged 0 to 17 years in Germany was 228.9 per 100,000 people (girls 223.7; boys 234.0). This corresponds to an absolute number of 30,957 cases. Prevalence increases with age to 441.8 among 15 to 17-year-old girls and 486.0 among boys of the same age.
During the 2014 to 2019 observation period, cases decreased annually on average by 0.2%, with a more pronounced trend among girls (0.5%) than among boys (0.1%).

Conclusion

In 2019, around 31,000 children and adolescents were affected by type 1 diabetes. The prevalence was slightly higher among boys. Nationwide analyses for 2014 to 2019 using registry data show that the prevalence of type 1 diabetes in children and adolescents in Germany decreased slightly each year.

Show more information on methodology and data sources

Definition

The indicator prevalence of type 1 diabetes is defined as the number of children and adolescents with a registered or documented case of type 1 diabetes in one year per 100,000 people in relation to the number of children and adolescents in the population. 

Reference population

Children and adolescents aged between 0 and 17 years who are resident in Germany.

Data Sources

Nationwide and regional diabetes registers (DPV register, ESPED incidence register, North-Rhein Westphalia register, Saxony diabetes register). The data are based on the September 2020 data set from the DPV database, which has been fully validated and committed to the database.

Calculation

  • Description: the frequency of cases per 100,000 children and adolescents aged between 0 and 17 in Germany during the 2014-2019 observation period
  • Extrapolation/weighting: the population data gathered by the Federal Statistical Office during the 2011 census were used for the nationwide estimates. Results with 95% confidence intervals were estimated using the person-years method. A Poisson distribution of cases was assumed (Woodward 2013; Sahai 1993).
  • Age standardisation: Estimates were standardised by age and sex and were equally weighted for the age groups under consideration.

Data quality of the participating practices

The diabetes registries provide outpatient or inpatient diagnostic data and information on the type of therapy provided to people with statutory and private health insurance. This includes information about people with different types of diabetes and age groups. These data are provided by practices and clinics participating on a voluntary basis. The data quality depends on the practice providing the data. All documentation is subject to a thorough plausibility check. Statistical methods are used for extrapolation and to ensure full coverage of the reference population.

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