GSB 7.1 Standardlösung

Prevalence of type 1 diabetes

The frequency (prevalence) of illnesses and the resulting absolute number of cases are key figures with which to assess the current trajectory of a disease. Prevalence also determines patient care and provides an important basis for health policy planning.

Key messages

  • In 2020, around 31,500 children and adolescents in Germany had type 1 diabetes.
  • The prevalence increases with age and is highest among 14- to 17-year-olds.
  • There was a slight annual decrease in prevalence between 2014 and 2020.

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By state

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  • By gender

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  • By age

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  • By education group

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Result

In 2020, the prevalence of type 1 diabetes in children and adolescents aged 0 to 17 years in Germany was 232.2 per 100,000 people (girls 226.0; boys 238.4). This corresponds to an absolute number of 31,466 cases. Prevalence increases with age to 430.3 among 14 to 17-year-old girls and 481.4 among boys of the same age.
During the 2014 to 2020 observation period, cases increased annually on average by 0.1%, whereby with a decreasing trend among girls (0.2%), but an increasing trend among boys (0.4%).

Conclusion

In 2020, around 31,500 children and adolescents were affected by type 1 diabetes. The prevalence was slightly higher among boys. Nationwide analyses for 2014 to 2020 using registry data show that the prevalence of type 1 diabetes in children and adolescents in Germany increased slightly each year.

Show more information on methodology and data sources

Definition

The indicator prevalence of type 1 diabetes is defined as the number of children and adolescents with a registered or documented case of type 1 diabetes in one year per 100,000 people in relation to the number of children and adolescents in the population. 

Reference population

Children and adolescents aged between 0 and 17 years who are resident in Germany.

Data Sources

Nationwide and regional diabetes registers (DPV register, ESPED incidence register, North-Rhein Westphalia register, Saxony diabetes register). The data are based on the December 2020 data set from the DPV database.

Calculation

  • Description: the frequency of cases per 100,000 children and adolescents aged between 0 and 17 in Germany during the 2014-2020 observation period
  • Extrapolation/weighting: the population data gathered by the Federal Statistical Office during the 2011 census were used for the nationwide estimates. Results with 95% confidence intervals were estimated using the person-years method. A Poisson distribution of cases was assumed (Woodward 2013; Sahai 1993).
  • Age standardisation: Estimates were standardised by age and sex and were equally weighted for the age groups under consideration.

Data quality of the participating practices

The diabetes registries provide outpatient or inpatient diagnostic data and information on the type of therapy provided to people with statutory and private health insurance. This includes information about people with different types of diabetes and age groups. These data are provided by practices and clinics participating on a voluntary basis. The data quality depends on the practice providing the data. All documentation is subject to a thorough plausibility check. Statistical methods are used for extrapolation and to ensure full coverage of the reference population.

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