Incidence of type 1 diabetes
The rate of new cases (incidence) and the resulting absolute number of new cases are key indicators with which to assess the dynamics of type 1 diabetes. Furthermore, the incidence influences the development of the prevalence and the number of people who can be expected to need treatment (Tönnies et al. 2019).
- Around 3,500 children and adolescents aged between 0 and 17 were diagnosed with type 1 diabetes for the first time during the 2014 to 2019 observation period every year.
- The incidence of type 1 diabetes is highest among those under the age of 15, with boys more frequently affected than girls.
By education group
Between 2014 and 2019, the incidence of type 1 diabetes in children and adolescents aged between 0 and 17 in Germany averaged 25.7 per 100,000 person-years (girls 24.3; boys 27.1). This corresponds to an absolute number of 20,690 new cases (an average of 3,448 per year). The highest incidence per 100,000 person-years was identified among 5 to 9-year-old girls (33.9) and 10 to 14-year-old boys (37.7). During the 2014-2019 observation period, the incidence of type 1 diabetes per 100,000 person-years increased 1% annually. The incidence among boys (1.5%) was greater than among girls (0.4%).
Nationwide estimates based on registry data show that the incidence of type 1 diabetes in children and adolescents in Germany is increasing. Every year around 3,500 children and adolescents develop type 1 diabetes. Boys are more frequently affected than girls and the incidence increased more among boys during the observation period than among girls.
Show more information on methodology and data sources
The indicator of the incidence of type 1 diabetes is defined as the number of children and adolescents with a registered or documented new case of type 1 diabetes in one year per 100,000 children and adolescents in the population.
Children and adolescents aged between 0 and 17 years who are resident in Germany.
Nationwide and regional diabetes registers (DPV register, ESPED incidence register, North-Rhein Westphalia register, Saxony diabetes register). The data are based on the September 2020 data set from the DPV database, which has been fully validated and committed to the database.
- Description: the frequency of cases per 100,000 children and adolescents aged between 0 and 17 in Germany during the 2014-2019 observation period
- Extrapolation/weighting: the population data gathered by the Federal Statistical Office during the 2011 census were used for the nationwide estimates. Results with 95% confidence intervals were estimated using the person-years method. A Poisson distribution of cases was assumed (Woodward 2013; Sahai 1993).
- Age standardisation: Estimates were standardised by age and sex and were equally weighted for the age groups under consideration.
Data quality of the participating practices
The diabetes registries provide outpatient or inpatient diagnostic data and information on the type of therapy provided to people with statutory and private health insurance. This includes information about people with different types of diabetes and age groups. These data are provided by practices and clinics participating on a voluntary basis. The data quality depends on the practice providing the data. All documentation is subject to a thorough plausibility check. Statistical methods are used for extrapolation and to ensure full coverage of the reference population.